Glycogen Storage Disease Funding










Grant/Fellowship Policy


  • The Scientific Advisory Board will review grant and fellowship applications annually and make recommendations for awards to the Board of Directors.
  • The focus of the proposal should be on GSD Type 1a research, diagnosis or patient care.
  • The amount of the awards will be reviewed on a yearly basis and will be determined individually.
  • The award may be used to fund salaries, supplies, and equipment directly related to the proposed studies. Indirect costs, meetings and travel expenses will not be funded.
  • Partial funding may be awarded if the grantee has documentation that the remainder of the funding for the proposed research has been successfully acquired.
  • Projects requiring multi-year funding must be reviewed each year by the Scientific Advisory Board. Continued funding will be based on demonstrated evidence of progress and available funds. Interim Reporting and Progress Assessment Research Committee assessment of annual progress reports to include research findings, abstracts and publications. Include audit of annual expenditure reports.
  • The Children’s Fund for Glycogen Storage Disease Research will seek to fund at least one grant per year.


Eligibility Requirements

Applications may be submitted by domestic and foreign, nonprofit and for-profit, public and private organizations. Applications from minority individuals, women and young investigators are encouraged. Applicants should hold an M.D. and/or Ph.D. degree (or equivalent doctoral degree) at the time of the application submission. Fellowship applicants are required to provide a letter of support from the preceptor and evidence of the preceptor’s external funding for related scientific or clinical research.





How to Apply


  1. The body of the proposal should contain (not more than 3 pages):
    1. Project summary – a brief description of the goals of the research, outcome measures, and how the work will potentially benefit GSD Type 1a patients.
    2. Duration of the project – provide an overview and justification of the timeline for the project.
    3. Budget – include only study specific expenses. (Travel expenses will not be covered.)
    4. Other funding sources – indicate other current and pending funding sources for the project.


  1. Provide background information on all researchers involved in the project, including CVs, bibliographies, and any additional information deemed appropriate.


  1. Where applicable, include documentation of IRB approval for the use of any human subjects in the proposed study or IACUC approval for the use of animals.


  1. To save time and money, SUBMISSION VIA EMAIL is required. .



David Feldman

Chair, Scientific Advisory Board

The Children’s Fund for GSD Research, Inc

20 Sherwood Lane

Cheshire, CT 06410

203.272.2873 (CURE)

feldo [at]